Prostate cancer. A useful resource.

[The general]

Blood on semen common as well , just be aware of fever etc , ie infection

 

[pagey]

Still waiting for results, two weeks and two days now……, blood in urine went after 2/3 days after biopsy but then over the last two days there was blood again at the start., has now stopped again, anyone else had this?

mine stopped after about 5 days

 

[Hettie's Crew]

Still waiting for results, two weeks and two days now……, blood in urine went after 2/3 days after biopsy but then over the last two days there was blood again at the start., has now stopped again, anyone else had this?

Last year I had blood in the urine for well over a week, sometimes none then there again, clots came out in the first couple of days. Blood in semen was dark old blood, several days later and caused some discomfort.
This time I appear to be bleeding less, released after the first urine sample about 45 mins post procedure.
Definitely much less blood at home, (6hrs since at writing this) last year it was like peeing red wine and was a little concerning.

 

[DavidG58]

The blood in semen is a delicate area, I ‘knocked one out’ after my biopsy just to check , scared the beejeezus out of me how dark red it was

Not had an erection since

 

[The general]

Not had an erection since

Use it or lose it , mark my words .

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[DavidG58]

Saw my consultant yesterday for final chat about my RT starting tomorrow , he started by saying ‘as long as I sign off your scans we are good to go’

I was told that the CT scan picked up some ‘gas’ moving down my bowel and may need redoing , I really thought they would have checked by now

But he did say if we don’t get a phone call today we are good to go, so day 1 for me tomorrow , been well on top of hydration, even starting to enjoy water as a drink

Hoping for none of the numerous side effects mentioned although mostly under 1:10 risk many 1:100

 

[Lenny HB]

even starting to enjoy water as a drink

Oh dear the start of a downward spirel.

All the best for tomorrow.

 

[lorger]

Good luck for tomorrow

 

[Hirsch]

Good luck David

 

[The general]

You will find its goes quick, engage with others in the ‘ waiting ‘ area it will help . Get into a routine good luck

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[pagey]

Good advice above it becomes a little club

 

[rod_vw]

Good luck DavidG58 the days will fly by. As others have said make the most of the social atmosphere of the waiting room, it becomes quite a little club.
If you are lucky like me the side effects will be minimum.
Bowel empty and bladder full are the rules of the day, it's just the timing of the latter that can be a bit of a challenge.
Keep us posted on progress.

 

[DavidG58]

Day 1 I am told my bladder was slightly fuller than needed but better than not full enough

Day 2 I drink a bit less before setting off for hospital , drink my 500ml on arrival, set up on table told not full enough drink another 250ml we will try again in 20 mins .

All good at pre scan then machine breaks, tried several resets , still no good. Go back outside we will get you in next door. This is now 80 mins after arriving and really ready for a wee. Called to other room after 10 mins, scan good then this machine stops again, but goes again after 2 restarts

2 hours after last wee and after 750ml drink I can get loo, a true relief

They said they get the odd glitch but very rarely both machines on same day, never same patient

Hoping that’s my indoctrination and it will all go easily from here

 

[rod_vw]

Day 1 I am told my bladder was slightly fuller than needed but better than not full enough

Day 2 I drink a bit less before setting off for hospital , drink my 500ml on arrival, set up on table told not full enough drink another 250ml we will try again in 20 mins .

All good at pre scan then machine breaks, tried several resets , still no good. Go back outside we will get you in next door. This is now 80 mins after arriving and really ready for a wee. Called to other room after 10 mins, scan good then this machine stops again, but goes again after 2 restarts

2 hours after last wee and after 750ml drink I can get loo, a true relief

They said they get the odd glitch but very rarely both machines on same day, never same patient

Hoping that’s my indoctrination and it will all go easily from here

In our local jargon it could be said that "You must have trodden on a nest of toads"
As you've discovered it's all in the timing of the fluid intake and when the hospital process has a glitch the problems occur. Of my 20 fractions two were thrown out of sync by the RT team trying to make up time and one by my miscalculation.
Good luck with the future sessions but don't bother with the National Lottery for a few weeks after that experience.

Rod

 

[The general]

Baptism !!! I only had one red card bowel too full . Machines are problematic sometimes , but it will work out let me assure me . The professionals know what they are doing , always know where nearest toilet is , that goes for journey home take pee bottle , towel, toilet card i had accident twice in third week . Its all part of it . Good luck , keep us informed

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[pagey]

I had a few beers with a mate next day red card for bloat I was told try peppermint tea from the cafe ..its disgusting so went for a walk around St pauls and back all OK then lesson learnt but the beer was good

 

[The general]

peppermint tea

Oh yes I remember that now i was so good keeping to a diet from diagnose to treatment finish then i drifted back to old ways

 

[Rapido925M]

Early morning phone call yesterday: “can you do Saturday 5 October for your surgery?”
YES
“Be at the day procedure unit at 7am. Pre-op on Friday 27 September at 9am. Catheter removal at 10:30 am on 22 October”

Seems pretty organised to me!
All I have to do now is keep my nerves under control.

Gordon

 

[rod_vw]

Early morning phone call yesterday: “can you do Saturday 5 October for your surgery?”
YES
“Be at the day procedure unit at 7am. Pre-op on Friday 27 September at 9am. Catheter removal at 10:30 am on 22 October”

Seems pretty organised to me!
All I have to do now is keep my nerves under control.

Gordon

Stick with it Gordon and the very best of luck.

 

[The general]

All I have to do now is keep my nerves under control.

You will, knowing so many been before AND after you .good luck , i find the subject of prostrate cancer an interesting subject bizarrely .

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[Rapido925M]

At this morning PreOp Assessment the ECG threw up a problem with my heart. I see an an aneasthetist on Tuesday to determine if I’m capable of undergoing the procedure

I guess I’m grateful that another health issue has been discovered and that, hopefully, it will be resolved. There are other ways of dealing with my prostate but a non-functioning heart is not an option

Gordon

 

[DavidG58]

All going pretty well for me, day 8 out of 20 RT treatments

No issues today but I was told my bladder was small today but just passed their tolerance levels

Maybe being Friday helped

I could actually tell I wasn’t so ‘full’ as often bursting for a wee when I go in, good reminder to up the water intake before arriving

Good luck all of you whatever stage you are at

 

[sedge]

At this morning PreOp Assessment the ECG threw up a problem with my heart. I see an an aneasthetist on Tuesday to determine if I’m capable of undergoing the procedure

I guess I’m grateful that another health issue has been discovered and that, hopefully, it will be resolved. There are other ways of dealing with my prostate but a non-functioning heart is not an option

Gordon

The thing you have to consider Rapido925M is that the anaesthetist is not only responsible for getting you to sleep, but also for waking you up again and monitoring you thereafter for however long that takes, to make certain you really are OK. Hence what they say, goes, so we keep our fingers crossed you get the go ahead on Tuesday.

 

[Tricky One]

3 1/2 yrs in Remission and going strong. Never knew, discovered by accident following a blood test for something else during Covid Pandemic. PSA 25. Diagnosed with Stage 3 Localised Advanced Prostate Cancer. Biopsy 23 out of 25 samples positive. Thankfully Cancer had not spread from the Prostate, though it could not be removed. A month of Radiotherapy plus Hormone injections. Point is I didn't have any recognisable symptoms, if it hadn't been for the unrelated blood test it would have been too late.
See your Doctor and insist on a PSA Blood test. It's your right.

 

[DavidG58]

See your Doctor and insist on a PSA Blood test. It's your right

I think most of us on this thread know, but also spread the word as far as we can

My doctors wouldn’t test me ‘just in case’ but my dull ache in my groin which they said wouldn’t be prostate cancer and maybe wasn’t, triggered my test and diagnosis like you effectively with no symptoms

Talking to other patients at the RT clinic there are so many variations from different practices but mostly seem to put off doing PSA checks

One ‘lucky’ chap diagnosed by biopsy with PC, sent for body scan to check if it had spread to his bones. They found an unrelated cancer growth in one kidney. He now has only kidney and not Prostate gland

So sad that so many don’t find out in time

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[rod_vw]

DavidG58 and Tricky One I was very like you two. I had a number of friends who had been diagnosed wirh PC so at the age of 74 I decided to ask my GP for a PSA test. I was initially told "We don't offer that on demand". It took very firm instance to get that first test.
I'm now six weeks post RT and enjoying four weeks touring France.
I have a blood test booked for 8th October and a meeting with my consultant booked for the 23rd. Just hoping everything is looking good then.

 

[The general]

Good luck all of you whatever stage you are at

That includes after treatment for years

 

[Rapido925M]

The anaesthetist was positive and called me a “healthy chappie”.

Unfortunately, the MRSA swabs showed positive so my wife and I have cream to wipe into our noses three times per day plus special shampoo/body wash to use daily. We have just had to buy extra sheets so that we can change the bedding daily.

Additionally, I am last on the theatre list as I’m classed as “dirty”. AND the surgeon is being consulted to see if he wants to postpone.

I’m guessing that he will say no, as they will not be able to get a replacement through the pre-op checks before Saturday

Gordon

 

[Hettie's Crew]

Following on from my 15 biopsies on 29th August (post #714) my NHS app showed a message yesterday. I have an appointment with Mr Smith (Consultant Urologist) for 22nd October, no doubt a letter will follow.
Last year when I had the first appointment after the initial investigations one biopsy out of the 14 proved positive, this time they took 15 and I was warned that they could all come back negative as the procedure is a bit hit and miss.

 

[gus-lopez]

so at the age of 74 I decided to ask my GP for a PSA test.

It would never occur to me at that age to ask for one? My father was diagnosed at 78 & even then was told "you're not going to die of this" & he didn't. died 12 years later of pneumonia.

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