Prostate cancer. A useful resource.

[The general]

just hope the bowls and bladder recover fully

Very individual , i still not fully recovered and dont think i will , but it’s manageable

 

[The general]

had my meeting today and was told i was now free of cancer with a psa reading of 0.02 i will stay on hormones for 18 months with a blood test every 6 months, very happy with that and only 8 months from diagnose to being free of it. just hope the bowls and bladder recover fully

You do get a sense of elation as i did 0.02 is very very good , did the oncologist say magic figure of 2 from nadir and NO SPIKES allowed at 6 monthly tests .

 

[DavidG58]

had my meeting today and was told i was now free of cancer with a psa reading of 0.02 i will stay on hormones for 18 months with a blood test every 6 months, very happy with that and only 8 months from diagnose to being free of it. just hope the bowls and bladder recover fully

Brilliant news and rapid reaction by your health authority, I am 7 months post diagnosis and starting my RT next month

I have today got the CT scan sorted, although apparently some ‘wind’ moved right at the end and they think the consultant might want it redoing

Got the results of my PSA done last week, down to 0.2 which is as they would expect at this stage

MRI tomorrow then a 2 week gap, I am planning a few days away and hoping they don’t want the CT scan redoing , but the nurse did say just go tell them you are away

 

[The general]

some ‘wind’ moved

Very common , i would have it done again the oncologist wont approve treatment if hes not happy to start RT , everything got to be in your favour to give you best outcome

 

[gus-lopez]

had my meeting today and was told i was now free of cancer with a psa reading of 0.02 i will stay on hormones for 18 months with a blood test every 6 months, very happy with that and only 8 months from diagnose to being free of it. just hope the bowls and bladder recover fully

Great to hear.

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[Hirsch]

This thread is excellent at highlighting the differences across the country regarding initial GP response to PSA testing/referral and subsequent intervention and treatment by the hospital.
I’m very happy with my GP practice and the local Trust for how they manage Cancer care, I can’t fault a single thing and that’s high praise from an ex senior nurse.

Wish i still lived up there knowing this

 

[Hirsch]

had my meeting today and was told i was now free of cancer with a psa reading of 0.02 i will stay on hormones for 18 months with a blood test every 6 months, very happy with that and only 8 months from diagnose to being free of it. just hope the bowls and bladder recover fully

Wow I might make it inside 18 months. Oh wait a minute. It's been 18 months already.

 

[The general]

Wow I might make it inside 18 months. Oh wait a minute. It's been 18 months already.

That is a long time unfortunately

 

[pagey]

i was told i could stop the injections which i detest but he did not advise it so i will carry on for the 18 to 24 months as i have don 8 months already

 

[Hirsch]

That is a long time unfortunately

It is rather

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[DavidG58]

It is rather

Hoping your biopsy results / Gleason scores were at least low

The worst bit of my diagnosis was the day of diagnosis , but then the delays with nothing happening have really played with my head

Are you literally on watch and wait or have you had any hormone injections ?

 

[The general]

i was told i could stop the injections which i detest but he did not advise it so i will carry on for the 18 to 24 months as i have don 8 months already

I was very lucky i only had 3 injections

 

[The general]

The worst bit of my diagnosis was the day of diagnosis

It did lessen the ‘ shock ‘ personally knowing a few mates already had it ! So common 1 in 8

 

[Hirsch]

Hoping your biopsy results / Gleason scores were at least low

The worst bit of my diagnosis was the day of diagnosis , but then the delays with nothing happening have really played with my head

Are you literally on watch and wait or have you had any hormone injections ?

Hormone treatment started at the turn of the year. I have now received a form telling me i need to get another PSA test in preparation for the pre planning appointment. That's the meeting before the RT planning CT scan. Getting closer by the day.

 

[pagey]

Hormone treatment started at the turn of the year. I have now received a form telling me i need to get another PSA test in preparation for the pre planning appointment. That's the meeting before the RT planning CT scan. Getting closer by the day.

This is when you get your 3 little tattoos

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[Hirsch]

This is when you get your 3 little tattoos

oo oo excited

 

[pagey]

oo oo excited

Don't get too excited they are about a foot apart

 

[DavidG58]

Don't get too excited they are about a foot apart

Got mine yesterday, all set to go in two weeks now

I found it quite emotional, but blame it on the lack of testosterone

 

[pagey]

Got mine yesterday, all set to go in two weeks now

I found it quite emotional, but blame it on the lack of testosterone

Agreed it tends to make you a little emotional as well as the hormone injections

 

[rod_vw]

Got mine yesterday, all set to go in two weeks now

I found it quite emotional, but blame it on the lack of testosterone

Testosterone, what's testosterone? I've almost forgotten!

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[The general]

Testosterone, what's testosterone? I've almost forgotten!

Use it ( best you can )or loss it

 

[The general]

all set to go in two weeks now

Good luck , you will find ,once started time will go quick . Recap , loose easy clothes to remove /put on , knowing where nearest toilet is , talk to fellow patients in waiting room , drink plenty of water etc etc

 

[pagey]

Testosterone, what's testosterone? I've almost forgotten!

Apparently you can get it in little blue pills at the chemist

 

[Hettie's Crew]

A bit sore, 15 biopsies this morning.

 

[DavidG58]

A bit sore, 15 biopsies this morning.

Good luck, 5:6 come back no cancer found

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[Hettie's Crew]

Good luck, 5:6 come back no cancer found

Already found last August, this is to check if it’s got any worse.

 

[DavidG58]

Already found last August, this is to check it it’s got any worse.

Although I read the 5:6 fact on PCUK web site , based on comments here none of us have been lucky enough yet maybe outdated, they can maybe better predict before doing biopsy now

 

[Dutch 68]

Although I read the 5:6 fact on PCUK web site , based on comments here none of us have been lucky enough yet maybe outdated, they can maybe better predict before doing biopsy now

Still waiting for results, two weeks and two days now……, blood in urine went after 2/3 days after biopsy but then over the last two days there was blood again at the start., has now stopped again, anyone else had this?

 

[DavidG58]

Still waiting for results, two weeks and two days now……, blood in urine went after 2/3 days after biopsy but then over the last two days there was blood again at the start., has now stopped again, anyone else had this?

Every time I go in for anything they ask amongst many other questions ‘blood in urine?’ So presume it must be qujte common, but not for me since a week after biopsy

 

[The general]

Still waiting for results, two weeks and two days now……, blood in urine went after 2/3 days after biopsy but then over the last two days there was blood again at the start., has now stopped again, anyone else had this?

No problem keeping drinking plenty of water

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