Prostate cancer. A useful resource.

[big bertha]

Thank you and BillandHelen. Colin is seeing Oncologist at the Western in a couple of weeks.A Mr Malik. We are used to the Western Oncology dept as I was treated 14 years ago there for tongue cancer. We reckon it'll be radiotherapy as he's been on hormones for 3 months and due another injection soon. He was told by Urologist they don't usually opt for removal.

 

[BillandHelen]

Thank you and BillandHelen. Colin is seeing Oncologist at the Western in a couple of weeks.A Mr Malik. We are used to the Western Oncology dept as I was treated 14 years ago there for tongue cancer. We reckon it'll be radiotherapy as he's been on hormones for 3 months and due another injection soon. He was told by Urologist they don't usually opt for removal.

Looks like Colin is in excellent hands, he is very experienced and also works in the private sector at the Spire hospital.

“Dr Malik is a Consultant in Clinical Oncology at the Edinburgh Cancer Centre and an Honorary Senior Clinical Lecturer at the University of Edinburgh. His main clinical interests are in urological cancers especially prostate, renal, bladder and germ cell cancers. He has extensive experience in clinical trials related to urological cancers, advanced radiotherapy techniques (SABR, VMAT and brachytherapy) and has been a principal investigator on several practice change urological cancer trials.”

 

[DavidG58]

I have just had a telephone consultation with my oncologist, six months after my RT, PSA test last week is in his words barely detectable at 0.004

Next test in 6 months , but all as good as could be hoped, a few minor bowel issues but minor compared to the alternative

 

[pagey]

Same as me just a 6 monthly blood test and surveillance

 

[The general]

Yes par for course overvtome psa will rise and psa reading are much more reliable AFTER TREATMENT, as for bowel problems again par you course i never recovered ref bowel problems

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[Speve]

Unfortunately in my case I already have a bowel condition and I have to perform self catheterisation three times a day as my bladder retention is very high oncology are concerned that if RT is used it could make it worse and long term they feel surgery is my best option.
On talking to the surgeon who showed me my MRI pictures and explained everything I could see a definite shadow of cancer and I feel it’s the right way for me to go it’s going to be Robotic surgery via keyhole and he was very reassuring and informative about the whole process he also told me that he suspects that I will still need to self catheterise as my bladder is twice normal size and walls are thin. I’m now on the list for surgery it’s around three months and I have to start hormone therapy soon.
My GP is investigating my bowel troubles but not very successfully. Watch this space

 

[varaizian]

Unfortunately in my case I already have a bowel condition and I have to perform self catheterisation three times a day as my bladder retention is very high oncology are concerned that if RT is used it could make it worse and long term they feel surgery is my best option.
On talking to the surgeon who showed me my MRI pictures and explained everything I could see a definite shadow of cancer and I feel it’s the right way for me to go it’s going to be Robotic surgery via keyhole and he was very reassuring and informative about the whole process he also told me that he suspects that I will still need to self catheterise as my bladder is twice normal size and walls are thin. I’m now on the list for surgery it’s around three months and I have to start hormone therapy soon.
My GP is investigating my bowel troubles but not very successfully. Watch this space

None of the standard emogies are appropriate so this is just to say that I have huge sympathy for your situation and wish you the very best for a reasonable outcome.

 

[varaizian]

I said I would let people know how my situation panned out. I have finished all the investigative stuff and 2 days ago I was told by the consultant that the urology team have decided that, because my cancer is not particularly invasive and has not spread to other bones or tissue, it and can be treated solely with radiotherapy. My programme starts on Monday next week and will involve around 36 sessions. I have been passed back to the care of my GP equivalent and the next appointment with the consultant is March 2026. I remain completely symptom free apart from needing a pee in the middle of the night: but then who doesn't at 76!

 

[Speve]

needing a pee in the middle of the night: but then who doesn't at 76!

Unfortunately I don’t at 73 but that’s due to retention

 

[big bertha]

Colin had his first Oncologist appointment today.He's on a curative path. It has spread to 1 lymph node so Brachytherapy not an option. He will stay on 3 monthly hormone injections plus Abiraterone and steroid for 2 years and radiotherapy in June for the month. He had a nice lady doctor in Edinburgh today. I believe this drug is not used in England for people with cancer that has not spread unless you pay for it privately. Nice doctor just phoned his liver healthy so safe to go on the pills and his psa down to 0.6 from 136.

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[The general]

0.6 from 136.

HT does it’s work. Ex

 

[phil_in_npton]

Good Morning

This is a brilliant thread to make people more aware of all the options and scenarios that are possible. It’s comforting in a strange way that one is not alone in the worry and stress that begins from that very first “bad news” test.
I had that test, a charity one, £25 and a 6.1 red result. To docs and a NHS test confirmed figure. They booked me in for an MRI a week or so later. A nervous two week wait, then the phone call with results ( on our wedding anniversary)
I am all clear! No lesions visible, however prostate is 35% enlarged, but nothing to worry about. A marker of 7.4 set for future results to see if things need looking at in future.
I feel so lucky and a bit of a fraud reading some of your stories. Best wishes to all in any ongoing treatments and anyone not yet gone for a test, please do so! It’s better to know now and get it sorted than leave it till it’s too late.

Phil in Northampton

 

[rod_vw]

Good Morning

This is a brilliant thread to make people more aware of all the options and scenarios that are possible. It’s comforting in a strange way that one is not alone in the worry and stress that begins from that very first “bad news” test.
I had that test, a charity one, £25 and a 6.1 red result. To docs and a NHS test confirmed figure. They booked me in for an MRI a week or so later. A nervous two week wait, then the phone call with results ( on our wedding anniversary)
I am all clear! No lesions visible, however prostate is 35% enlarged, but nothing to worry about. A marker of 7.4 set for future results to see if things need looking at in future.
I feel so lucky and a bit of a fraud reading some of your stories. Best wishes to all in any ongoing treatments and anyone not yet gone for a test, please do so! It’s better to know now and get it sorted than leave it till it’s too late.

Phil in Northampton

That's a wonderful result from being proactive and going for a test may your future yield the same.

All the very best to you Phil but remember to keep up the regular tests and take care of yourself & your family.