Prostate cancer. A useful resource.

[sedge]

I might be wrong but i think its after RT they csnt take it out.

Yes - True!

 

[Mike Warland]

I hope this helps.

There is a lot that you can do.

I keep myself very fit and always have done. In the three week lead to my prostatectomy I had post-it notes stuck all over the house incl the loo marked “Pelvic floor exercises” (don't do them during though !!)

I was doing them a dozen or so times a day.

I had the robotic surgery and put my very speedy recovery including fully functional waterworks
totally down to my fitness.

Yes I did pelvic floor exercises for a couple of weeks before the prostatectomy I didn't know about cancer much earlier and I am still doing them 4 weeks after surgery leaking is not excessive but how soon did you return to fully functioning waterworks.

 

[Oldrat]

Yes I did pelvic floor exercises for a couple of weeks before the prostatectomy I didn't know about cancer much earlier and I am still doing them 4 weeks after surgery leaking is not excessive but how soon did you return to fully functioning waterworks.

I’d been doing PF exercises for about three weeks maybe a month beforehand.

I’d bought in a variety of different mens “Tenna” type pads as I hadn’t a clue what to expect.

I ended up throwing most of them away as it was only a few days/ a week before I didn’t need them.

I did however use the waterproof ‘covers’, the very thin ‘just in case’ inserts for a while as the odd time I was caught out with a cough or a sneeze.
But that didn’t last long.

 

[DavidG58]

apologies for this, I have signed up for prostate awareness walk 11K steps every day in March

Do not feel obliged to contribute , but if you have found a fiver and don’t know what to do with it I would like to make my target

I have managed my steps for the first 2 days it’s quite a lot

I'm taking on March the Month

I'm raising money for Prostate Cancer UK by taking part in March the Month.

marchthemonth.prostatecanceruk.org

 

[DavidG58]

Still awaiting appointment with consultant to agree my treatment, so many people have told me it’s the waiting that is the worst , they are right

As my treatment is likely to be hormone therapy followed by radio therapy I really can’t think why I am not already taking something

Having had my prostate poked 12 times for biopsy I am also concerned that even if it hadn’t spread when checked it might have done now

For now I am at least partly distracted by the daily step count , lovely day today been out for a decent walk, well on track 4 days in

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[The general]

As my treatment is likely to be hormone therapy followed by radio therapy I really can’t think why I am not already taking something

Having had my prostate poked 12 times for biopsy I am also concerned that even if it hadn’t spread when checked it might have done now

Let me assure you ( i been thru it ) its so so slow growing ht injections will control it and RT will zap it . The prostrate will end up mashed , in a good way ! Stay getting them steps up . Let us know hiw many fractions you going to have but first its HT !

 

[The general]

After i had my treatment i asked for medical records didn't understand s lot of the medical terms but found it most interesting , even when i had the red card one day my bowel was too full and they wouldnt let the linear machine do its biz ! Until I emptied my bowel ! All in a days work for the nursing team !

 

[pagey]

had a meeting with the rt consultant last friday and he has made another app for me at the end of april . i have had 1 hormone jab which lasted for 1 month and 1 3month jab, he said if my blood test at the end of april shows a psa less than 1 i can start rt soon after. I am having 20 sessions at st barts in london but the hormone injections will continue for 2 years Dont worry about the time scale im 75 and been told something else will finish me off first even if i dont have treatment

 

[The general]

Dont worry about the time scale im 75 and been told something else will finish me off first even if i dont have treatment

Yes , proven by numbers

 

[DavidG58]

Dont worry about the time scale im 75 and been told something else will finish me off first even if i dont have treatment

Yes , proven by numbers

I used to quote this until my own diagnosis, it definitely applies to 85% of prostate cancer cases, sadly though 10-15% where it spreads, most commonly to bones, have a 2-5 year life expectancy

That was my scary week waiting for bone scan results , thankfully then it hadn’t spread, but I can’t help but think the biopsy carries some risk of spreading by poking and the subsequent bleeding

Having been told I have high grade and aggressive cancer I just they would hurry up and do something

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[The general]

bone scan

Thats what i can’t understand health trusts have different ways of treating pc , i never had a bone scan ???? True a small percentage , if not caught early spreads to the bones

 

[pagey]

My bone scan came back normal

 

[pagey]

I'm not frightened by my cancer but I'm really pi55ed off that I cant go abroad in the van , I am also waiting to have a biopsy on one of 4 basal cell carsonoma that needs to be removed , I have counted up and I have at least 27 hospital appointments so no hols

 

[DavidG58]

Thats what i can’t understand health trusts have different ways of treating pc , i never had a bone scan ???? True a small percentage , if not caught early spreads to the bones

I think it depends on the position of the growth and size, they definitely mentioned the location of mine being significant , I think that’s what the ‘a’ is on my T3a diagnosis, but that’s only my guess

My Gleason score is 5/4 which I think is why I had the bone scan , a positive bone scan would mean it was T4 (stage 4), thankfully it was clear

 

[The general]

I'm not frightened by my cancer but I'm really pi55ed off that I cant go abroad in the van ,

Same as me , unfortunately being a solo traveller i am not confident in my health to travel overseas anymore , still i had my fair share , i love scotland !

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[The general]

My Gleason score is 5/4

Yes quite high mine was 4/3

 

[pagey]

That don't bother me I just have too many appointments my gleason was also 5/4

 

[rod_vw]

I used to quote this until my own diagnosis, it definitely applies to 85% of prostate cancer cases, sadly though 10-15% where it spreads, most commonly to bones, have a 2-5 year life expectancy

That was my scary week waiting for bone scan results , thankfully then it hadn’t spread, but I can’t help but think the biopsy carries some risk of spreading by poking and the subsequent bleeding

Having been told I have high grade and aggressive cancer I just they would hurry up and do something

Hi David, I to was frustrated by the delays especially after having the start of my RT pushed forwards in two month steps. In the end I got more than a bit forceful in an email to both the PALS and the complaints department at my hospital trust. That was last Thursday afternoon, by Friday afternoon I had an appointment at least 'pencilled in' for the 25th March. Maybe the person(s) who received that email knew that I have no qualms about involving my local MP!

Don't be afraid to do the same.

You can find my diagnosis and treatment time line on the Macmillan Cancer Support forum. It's detailed in my profile (Osca2023) on that forum.

Best wishes and keep smiling.

Rod

 

[CazPaul]

I used to quote this until my own diagnosis, it definitely applies to 85% of prostate cancer cases, sadly though 10-15% where it spreads, most commonly to bones, have a 2-5 year life expectancy

That was my scary week waiting for bone scan results , thankfully then it hadn’t spread, but I can’t help but think the biopsy carries some risk of spreading by poking and the subsequent bleeding

Having been told I have high grade and aggressive cancer I just they would hurry up and do something

Yes my father lived 3 years after his aggressive prostate cancer spread throughout his body.
Sometimes it’s just your luck, glad yours hasn’t spread David.

 

[DavidG58]

I did rattle the cage quite hard this week, the cancer support unit did their best to reassure me things were moving along but said they would send an email

Letter arrived today, face to face with oncologist next Wednesday 20th March hoping it is to start treatment not just discuss it a bit more

Did I mention my walking challenge

I'm taking on March the Month

I'm raising money for Prostate Cancer UK by taking part in March the Month.

marchthemonth.prostatecanceruk.org

Thank you to those who have sponsored me, I am halfway through the month and still going strong despite the awful weather

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[rod_vw]

I did rattle the cage quite hard this week, the cancer support unit did their best to reassure me things were moving along but said they would send an email

Letter arrived today, face to face with oncologist next Wednesday 20th March hoping it is to start treatment not just discuss it a bit more

Did I mention my walking challenge

I'm taking on March the Month

I'm raising money for Prostate Cancer UK by taking part in March the Month.

marchthemonth.prostatecanceruk.org

Thank you to those who have sponsored me, I am halfway through the month and still going strong despite the awful weather

View attachment 875677

Good on you, I rattled the cage last week and now have an appointment on the 28th March with the radiotherapy unit.

I sent a curt email late in the afternoon on Thursday 7th, had a reply early on the Friday morning then another later in the day saying that I was pencilled in for W/C 25th. Yesterday (14th) I had a phone call offering me an appointment on the 28th and written confirmation this morning.

 

[martin2603]

A year on from my initial diagnosis, had an MRI a few weeks back and the usual PSA, the results today show that there is no increase at all and I have ben put on 6 monthly PSA revies from now. Very pleasing and I hope that you other guys have better news soon .

 

[Hirsch]

Still awaiting appointment with consultant to agree my treatment, so many people have told me it’s the waiting that is the worst , they are right

As my treatment is likely to be hormone therapy followed by radio therapy I really can’t think why I am not already taking something

Having had my prostate poked 12 times for biopsy I am also concerned that even if it hadn’t spread when checked it might have done now

For now I am at least partly distracted by the daily step count , lovely day today been out for a decent walk, well on track 4 days in

View attachment 871193View attachment 871194View attachment 871192

I was in the same boat. Finally started hormone therapy and counting down the 9 month waiting list for RT. Only about 7 months left to go. I do wonder from time to time what, if anything has progressed in the year I have been waiting.

 

[The general]

I was in the same boat. Finally started hormone therapy and counting down the 9 month waiting list for RT. Only about 7 months left to go. I do wonder from time to time what, if anything has progressed in the year I have been waiting.

What was your psa ? Its common i started ht in april and started rt jan no problem , 20 fractions 5yrs ago

 

[pagey]

mines taking some time due another blood test on 23/04 appt with consultant 29/04 it my psa is below 1 i can start rt but he did not say when. i will really hacked off if i have to wait 9 months also i was told i have to have hormone injections for 2 years which was a surprise

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[The general]

below 1

That's low . Plus ht injections for 2yrs ,i only had 3 injections ,none after treatment v,gets back to my point different trusts have different ways of treating this cancer ???? Always surprised me theres no nationwide way of dealing with pc .

 

[pagey]

That's low . Plus ht injections for 2yrs ,i only had 3 injections ,none after treatment v,gets back to my point different trusts have different ways of treating this cancer ???? Always surprised me theres no nationwide way of dealing with pc .

ive had 2 already 1x1month and 1x3month with the next one due on 03/05 i think its time for a sort out with the consultant

 

[Nirvanauk]

ive had 2 already 1x1month and 1x3month with the next one due on 03/05 i think its time for a sort out with the consultant

I think that the consultant knows what your best treatment plan is, don't you?

 

[pagey]

I think that the consultant knows what your best treatment plan is, don't you?

for sure shame he dont tell me i find out more on here

 

[Stealaway]

mines taking some time due another blood test on 23/04 appt with consultant 29/04 it my psa is below 1 i can start rt but he did not say when. i will really hacked off if i have to wait 9 months also i was told i have to have hormone injections for 2 years which was a surprise

I've not asked the consultant but why is the hormone jab only for two years?
The other question I've been worrying about is what are the symptoms that show that the cancer is getting worse

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